Craziness....

Jacob is up to 6.5 lbs now!! His reflux is getting worse - he is needing more oxygen and this morning was unable to take his bottle without it spewing out of his nose. They are going to feed him using an NJ (through the nose and into the intestines) tube for the next 3 days, as a trial to see if it helps with his breathing. The doctors are basically reevaluating his condition at this point to try to get some answers. The geneticist did inform us last night that Jacob most likely has Cornelia De Lange Syndrome-CdLS (www.cdlsusa.org), so we now at least have some idea of what we're dealing with.
JD is doing well. He has begun to "pottytrain" himself a little, with help from Grana. We know he's really confused about all that is going on, but he's hanging in there with us. If you ask him about Jacob, he will say "baby Jacob hair stick up a lot, JD hair stick up little bit" or "baby Jacob got boo boo on nose, JD not have boo boo, God make it better".
Daniel is spending most of his time working and keeping up with everything else. Audri is at the hospital almost every day, sometimes all day. We have found an apartment and are lining things up to move this weekend. We are in limbo right now, but are all hanging in there and taking it a day at a time. Please pray that Jacob's reflux will improve such that we don't have to tube feed him long term and that we get "settled" into our new place before he is ready to come home. Also pray for JD and his understanding of what is going on, that he will continue to adapt and do well with all the changes and for Daniel, that his job will continue to go well.