Baby Jacob is still growing. He now weighs 3lbs 3oz. His feedings are at 4cc every 1 hour (continuous) through the tube right now, and he has been taken completely off the bottle feedings. This has happened because he has been having trouble keeping down his food. The doctors are pretty sure that it is just a reflux problem and are not too concerned. However, if he continues to have trouble feeding, they will need to look closer at his intestines, etc. Please pray that Jacob will do well with his feedings and be able to increase them enough to come off the IV nutrition and to start bottle feeding again soon. They say it will still be at least a few weeks minimum before he can come home.
The doctors are also telling us that Jacob has some rare condition or syndrome, but they haven't been able to pinpoint it yet. This suspicion started when Audri was 10 weeks pregnant, due to the ultrasound images, so we are not surprised at the news now. He has numerous markers and features that they are looking at, but because of the length of time it takes to do most gene tests (3-6 months), they may not be able to confirm a diagnosis for awhile. We have no idea what the future holds for us or for Jacob, but we know that God has His hand on us and Jacob. HE is completely in control of all of this "and we know that in all things God works for the good of those who love him, who have been called according to His purpose".
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I wouldn't worry too much about the reflux problem just yet. Gary had the same problen when he came home from the hospital. We ended up adding a little bit of rice cereal to his formula per doctor's orders, and he hasn't had much of a problem since. Gary's doctor said his was most likely because his digestive system wasn't quite fully developed yet.
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