Wednesday, December 23, 2009

The hopes and fears of all the years are met in thee to-night.

O little town of Bethlehem,
How still we see thee lie!
Above thy deep and dreamless sleep
The silent stars go by.
Yet in thy dark streets shineth
The everlasting Light;
The hopes and fears of all the years
Are met in thee to-night.

O morning stars, together
Proclaim the holy birth!
And praises sing to God the King,
And peace to men on earth.
For Christ is born of Mary
And gathered all above,
While mortals sleep the angels keep
Their watch of wondering love.

How silently, how silently,
The wondrous gift is given!
So God imparts to human hearts
The blessings of His Heaven.
No ear may hear His coming;
But in this world of sin,
Where meek souls will receive Him still,
The dear Christ enters in.

Where children pure and happy
Pray to the blessed Child,
Where Misery cries out to Thee,
Son of the Mother mild;
Where Charity stands watching,
And Faith holds wide the door,
The dark night wakes, the glory breaks,
And Christmas comes once more.
O holy Child of Bethlehem!
Descend to us we pray!
Cast out our sin and enter in,
Be born in us to-day.
We hear the Christmas angels
The great glad tidings tell;
O, come to us, abide with us,
Our Lord Emmanuel!

-Phillips Brooks





Merry Christmas

Wednesday, December 2, 2009

Longtime, not post

Quick update, we are in Rome and doing well. Jacob just had his feedings increased to 29cc/hr with 5hrs off a day. JD is doing great and is able to see his friends much more often! I hope to update this site again in the near future.

Thursday, August 27, 2009

Surgery went well

Jacob had his surgery as scheduled on Tuesday and it went pretty well, he has not bounced back yet from the surgery so he is still on the ventilator and in the PICU. He is slowly waking up but is still in a lot of pain so he is getting morphine among other things.

The first test that came back was the ABR which looks at his hearing and it is worse than they thought, he has 100% loss in both ears.

Audri has spent a lot of time at the hospital and I worked for about a day and a half before coming home for the week. JD is scheduled for surgery next Friday, which will require him to spend one day in the hospital but they are expecting a speedy recovery for him.

Monday, August 10, 2009

Surgeries are scheduled

This week has been mostly uneventful, we are gathering items to sell in a yard sale next Saturday the 15th. We will having at my parent's house and everyone is invited to join, message me for directions.

Jacob is scheduled for August 25th, he will be admitted on the 24th to make sure there are no holdups. JD's will be on September 4th and he should be home after only one night. We are thankful that Jacob's could be rescheduled so quickly.

Tuesday, August 4, 2009

All's Quiet on the Home Front

For those who do not follow us on other mediums, I am sorry. The boys have been out of the hospital for several weeks now and are doing well. Jacob was supposed to have surgery last Wednesday but it was canceled due to a blotched test. We are working to get both of the boys scheduled for August.

Sunday, July 12, 2009

Both boys in the hospital

On Friday evening, I came to the hospital to relieve Audri so she could go home and get some rest. She went home and spent about two hours with JD before determining that he needed to come to the ER. JD had been sick since Sunday night with what we thought was a stomach bug but, as we found out in the ER, he had an appendicitis.

They admitted him to the hospital early Saturday morning and put him a room next door to Jacob. He was in a fair amount of pain but got some sleep before he had a procedure to drain the affected area, that seems to have lessened his pain considerably and allowed him to sleep through the night. Currently, he is doing better and eating some Cheerios and drinking apple juice. He is feeling much better and expected to have surgery in four to six weeks to remove all the remainders of this appendix.

Jacob is about the same and both boys are expected to go home early this next week.

Friday, July 10, 2009

Month since last post....

It has been a month since our last post, too many plans to say a lot and saying nothing instead. Jacob is back at CHOA, he had some GI problems on Tuesday and they admitted him that evening. JD was sick with a stomach bug starting on Sunday night but we are not sure the two are related. Jacob is supposed to come home today, we will see what happens.

Over the past month, Jacob has been growing and getting used to living at home. He enjoys looking around more and weighs around 12 lbs. Thank you all for your support.

Wednesday, June 10, 2009

It's been a week...

It has been a week since we set foot in a hospital. Jacob was discharged last Wednesday and we have had no ER visits since then. We are looking forward to a few more weeks at home. Jacob has been to one of his two doctor's appointments for today and he now weighs 10lbs 5ozs. He hope that he continues to gain weight and we are planning a surgery to put in a G-Tube and do a fundoplication to eliminate his reflux as much as possible.

Audri and I have been amazed at how our family and friends have gone the extra mile to show how much they care. We deeply appreciate the prayers you all have given on our behalf and especially how our church and friends in Rome have taken several hours out of their day (and sometimes their whole day) to come visit with us. We are forever grateful for all the things people have done to show that they care.

Saturday, June 6, 2009

We are home


We were released from the hospital on Wednesday and are now at home. Jacob is even more alert and really likes to be held, a 180 from when he went into the hospital. His oxygen needs have increased slightly from when we left Northside, he is now at 1/4th to 1/2th of a liter, depending on his mood. Last night, he pulled his oxygen cannula out of his nose and that caused himself to desat.

Saturday, May 30, 2009

...still at the Hospital

Jacob's oxygen needs are slowly getting under control. He is down to two liters (from four) and will hopefully be continuing to do better on his own. Audri has taken the 'night off' to spend some much needed rest at home with JD. She has spent the last week staying with Jacob at the hospital while I went to work and stayed with JD.

Tuesday, May 26, 2009

9 days in the hospital and counting....

Jacob is still in the hospital. His pneumonia has cleared up, but he is having other issues with his lungs that they have to stabilize before he can go home. He is on a high flow of oxygen and they can't send him home on that, so we will be here until they can successfully wean his oxygen needs back down. While here, Jacob has managed to pull his feeding tube out twice and keep all the nurses busy with his 'episodes'-where he drops his O2 saturation levels real low and they have to give him an extra "boost" of oxygen. They are also evaluating him for seizures, as they suspect that may be part of his 'episodes'.

Tuesday, May 19, 2009

Pneumonia...

Jacob is back in the hospital. He was admitted Sunday night with pneumonia and will be here at least until Friday...

Quick number facts:

2.7 - jacob's weight at birth in lbs

14.75 - his length at birth inches

9.3 - his weight now - lbs

19 - his length now in inches

90 - days he spent in hospital after birth

6 - doctor's appointments he had in first two weeks home

13 - days he spent at home before going back into the hospital

6 - weeks premature he was

14 - how many specialists we have to follow up with in the next few months

2 - how many times he pulled out his feeding tube in the first week home

6 - pieces of medical equipment we have at home

9 - medicines taken daily

2 - lbs he has to gain before having surgery (fundoplication and gtube to help with reflux and his breathing issues)

6 - weeks he has to be pneumonia free before having surgery (however, the surgery may have to be done sooner to prevent him from getting pneumonia again)

3 - hours of sleep Audri gets at night

24 - hours that Jacob's feeding pump runs

7,000 - our out of pocket expenses so far for Jacob's care

500,000 - Jacob's medical expenses from first 90 days

15 - cans of special high calorie formula Jacob consumes in a month

15 - cost of each can of formula ($225/month)

105 - number of days we have been blessed to have baby Jacob in our lives!!

Friday, May 15, 2009

The Results Are In...

The final DNA tests have come back on Jacob and they have confirmed what we suspected. He does, in fact, have Cornelia de Lange Syndrome. There is a gene, NIPBL, on chromosome 5 that causes CdLS when it is found to be mutated or changed. This is the case with Jacob. Please visit www.cdlsusa.org for more information about the syndrome, if you are interested.

A quick update on Jacob's progress so far:

He weighs 9 lbs and is 19 inches long, 3.5 months old!

His reflux and breathing issues continue. He is still on oxygen and will be for a while. The feeding tube goes in through his nose and into his intestines. The plan is to move the tube up from his intestines into his stomach next month. As long as Jacob is fed into his intestines, he has to be on continuous feeds with a feeding pump. Basically, this means he is hooked up to the pump 24 hrs a day with a slow rate of milk dripping in.

Jacob still has high blood pressure and is being monitored closely for any problems related to it, but so far he has had no issues with it. The doc thinks he will outgrow it. He will likely still need hearing aids for his hearing loss, but we don't know when that will happen. We have had 4 appointments this week, and have 3 next week, and 2 so far the week after that. Things are hectic right now, but well worth it.

Wednesday, May 6, 2009

We saw the Governer (our first 36 hours)

We left Northside Hospital at about 2pm on Monday and our first thirty-six hours were rather hectic and will hopefully not reflect life with Jacob. It started with Audri, Jacob and I getting into our car with Joy helping us put all of his accessories into the car and the feeder quit working. We had used the hospital's feedbag which worked with a different model pump by the same brand but we could not get it to work with our pump. So, in the car, I hurried to find a new feedbag and it worked. We got home without getting stuck in too much traffic.

When we got home, we told JD we have a surprise for him and he ran into the living room to see Audri holding Jacob's car seat, which he had seen before, and he exclaimed excitedly "Baby Jacob's Car seat!" After we put the car seat down he saw Jacob and exclaimed "Baby Jacob. Baby Jacob in Mommy Daddy new house!". He has been really excited to be around Jacob and wanted to take care of him as best he can.

The rest of the evening and the night when pretty well. Audri and I worked out a system where I go to bed somewhere between 8pm and 9pm and she stays with him, dozing as she is able until about 2am when she comes and gets me and we switch. I go in and sleep on the couch and she sleeps to about 8am. It works pretty well and he is a decent sleeper. It does help that his feeds are continuous so there are not 3o minute feeding sessions, just pour it in the bag and you are done.

The incident happened about 7:30am, before he got his blood pressure medicine. I was up with him and had just laid him in his bed when he pulled his feeding tube out. His feeding tube is an NJ or TP, depending on who you ask, so it goes down through his stomach into his intestines. There is no way for us to put it back in ourselves, it requires x-rays to make sure it is in the right spot. We are trained to put in an NG tube (to the stomach) but, with all the stress, we were unable to get it in so we called all our different doctors and headed to the Scottish Rite ER.

When we got to the ER, we noticed a lot of Georgia State Patrol officers standing around, it honestly looked like they were having a convention, but the rest of the hospital seemed normal so we went on in. Audri put in a call to the GI doctor and did not check us in because they would handle the scheduling of the procedure to put the tube back in. We then proceeded to walk down to the main entrance, walking by the twenty or so GSP officers. When we got in the entrance, we did not know where else to go so we just found a column with hand-sanitizer and waited. Bear in mind Jacob has not eaten for about two hours and we were both very worried about the whole thing. The GI nurse, somehow, was able to spot us and figured out who we were (probably the scared looks on our faces) and said she had to do a few things but she would get to work on scheduling an appointment for us.

Soon after the GI nurse left, Governor Sonny Perdue came through the front doors with all the GSP officers, his staff and other people following him. We found out later he was signing a super-speeder bill that goes to fund the trauma network in Georgia. We ended up with him walking by us three times while we were sitting in the lobby, waiting.

The waiting was hard and by the time he got in for his procedure it was about 11-11:30 so he had not eaten for around three and a half hours. The procedure went pretty well, he was extremely mad the whole time but I would be too if someone stuck a tube down my nose to my gut and we packed up and went out the door. We ran into another feeding issue when we got in the car but I fixed it and we were on the way home.

About the time we were getting of the exit for our house, the feeding pump started complaining again about a clog below the pump and I was unable to remedy. I reset it and pumped milk through the extra valve on the tube and it all seemed to work fine so it had to be inside of Jacob. So back to the ER we went.

When we arrived, we checked ourselves into the ER directly and were triaged before being taken back to a room. That part was definitely smoother because we knew we had a nurse watching on things and a doctor to order the procedure and did not have to hope that the GI doctor's office would handle it. In all fairness, the GI doctor's staff did handle the first one but it is a lot more reassuring to have the nurse and doctor there, struggling with the issue and seeing what was going on. By the time we got out of the second procedure, it was about 4pm so Jacob had not eaten for about 9 hours. It was time for his blood pressure medicine again and we really did not want to leave until we were sure that everything was in good shape. They let us stay in the room until we had everything under control and Jacob was eating and had taken his medicine. The doctors and nurses with Children's Healthcare of Atlanta at Scottish Rite were wonderful and did their best to take care of all of us, not just him.

By the time we got him home, it was around 6pm and we missed the nurse for the day due to the change in our schedule. Everything that evening and the next morning went according to plan.

Monday, May 4, 2009

Home at last...

Jacob is home after 3 months and one day. He weighs 8 lbs and 2 oz as of last night.

Wednesday, April 22, 2009

This past week


This past weekend I went home to find most of the boxes unpacked, Audri has been working overtime to get the apartment ready for Jacob to come home, which we hope is soon. He is still on the NG tube and seems to be doing pretty well with it, not as well as with the NJ tube but well enough that he may come home with it. He has not gained much weight in the last couple days since he registered 7lbs and 4 oz this past weekend.

Audri took him out of his "room" for the first time today on a stroller ride. A picture of him in the carseat which is in the stroller is to the left. JD is really proud of 'Mommy and Daddy's new house' and the fact we can see the pool from our back porch.

Sunday, April 12, 2009

Thanks!!

Thank you all so much for your prayers and especially thank you to all who helped us move this week!! Everything happened so quickly and went so smoothly thanks to you!! We are beginning to settle into our new "home" and Jacob is continuing to grow and do well. He now weighs 6lbs 12oz and we are still waiting to bring him home. He is much more comfortable and able to breathe much better now that he is on the NJ tube feedings. They are still "trying" 2 bottles/day to see how well he tolerates them. Jacob would not be able to go home with the NJ feeds if we still lived in Rome, but should be able to come home sooner now that we are down here (since he will most likely come home on the NJ feeding tube). So, now we just continue to wait......

Tuesday, April 7, 2009

Craziness....

Jacob is up to 6.5 lbs now!! His reflux is getting worse - he is needing more oxygen and this morning was unable to take his bottle without it spewing out of his nose. They are going to feed him using an NJ (through the nose and into the intestines) tube for the next 3 days, as a trial to see if it helps with his breathing. The doctors are basically reevaluating his condition at this point to try to get some answers. The geneticist did inform us last night that Jacob most likely has Cornelia De Lange Syndrome-CdLS (www.cdlsusa.org), so we now at least have some idea of what we're dealing with.
JD is doing well. He has begun to "pottytrain" himself a little, with help from Grana. We know he's really confused about all that is going on, but he's hanging in there with us. If you ask him about Jacob, he will say "baby Jacob hair stick up a lot, JD hair stick up little bit" or "baby Jacob got boo boo on nose, JD not have boo boo, God make it better".
Daniel is spending most of his time working and keeping up with everything else. Audri is at the hospital almost every day, sometimes all day. We have found an apartment and are lining things up to move this weekend. We are in limbo right now, but are all hanging in there and taking it a day at a time. Please pray that Jacob's reflux will improve such that we don't have to tube feed him long term and that we get "settled" into our new place before he is ready to come home. Also pray for JD and his understanding of what is going on, that he will continue to adapt and do well with all the changes and for Daniel, that his job will continue to go well.

Saturday, April 4, 2009

"For I know the plans I have for you...."

Jacob had a PH probe study done on Thursday to evaluate his "reflux". The doctor called on Friday to tell us that his reflux was severe and that they would be considering surgery when he got over 10 lbs. There may be some alternatives to the surgery that we would look into, but we don't have to make any decisions yet. We found out today that in a 24 hr period, he has approx. 115 reflux episodes, with 7 of them lasting longer than 5 minutes. No wonder he has such a hard time breathing. They are planning to send him to Scottish Rite next week for an MRI of his spine and his ears (to look at the "tethering" of his spine and to get a better look at his ears regarding the hearing loss). He will also get an evaluation done on his airways. We are actually grateful they are not sending him home today, because according to the GI doctor - "if he goes home now, he will be back in the hospital within 2 weeks". Jacob will not be able to go home until they feel that he is stable enough to not have to be readmitted in the near future. We have yet to reach that point. They are telling us that even when he does go home, we should plan on spending a lot of time seeing specialists and even a few more hospital stays.......which brings us to the next thing on our minds.......we are planning to move down here to Atlanta. We've been considering it for a few months now, and the doctors are now telling us it would be the best idea for Jacob (at least in the short term) and may help us get him "home" sooner, since we'd be closer. So, we found an apartment today and should be able to sign the lease next week. Daniel will keep his job in Rome and stay there during the week, meaning Audri will take care of JD & Jacob during the week by herself. We realize this is not an "ideal" time to move, but we know this is what God is leading us to do. We'll start off with a 7 month lease, and maybe we'll be able to move back to Rome in November. We have no idea what's going to happen, but we do know that one way or another, God is in control and HE will work it all out.

Wednesday, April 1, 2009

not an april fools joke

jacob is not coming home saturday, as planned-will update more later when at a computer ...on mobile now

Saturday, March 28, 2009

What's going on with Jacob.....

Here's a quick summary of Jacob's "condition" at this point in time:
*weighs 5lbs 13.8 oz
*17 inches long
*gastroesophageal and nasopharyngeal reflux has damaged his airways and lungs leading to
*chronic lung disease (he will need to stay on oxygen when he goes home)
*takes all feedings by bottle using a special needs feeder to help him coordinate his swallowing
*eats small amounts (45cc - 1.5 oz) every 3 hours to help with reflux ("sleeping through the night" will have to wait a while)
*has moderate to severe hearing loss in both ears
*tethered spine - a neurological disorder caused by tissue attachments that limit the movement of the spinal cord within the spinal column (will be followed by a neurosurgeon)
*has the following heart issues - VSD (ventricular septal defect-hole), possible ASD (atrial septal defect), PPS (peripheral pulmonary stenosis), elongated aortic arch
*anemia
*high muscle tone (stiffness in neck, arms, and legs)
*weak cry indicative of possible vocal cord issues (to be followed by ENT)
*chromosome 11 deletion (a few genes missing - possibly insignificant)
*partial cleft lip and numerous other anomalies being investigated by geneticist (they have yet to make a diagnosis, other than to tell us he definitely has a chromosomal abnormality "syndrome" of some nature)

PICTURES











Friday, March 27, 2009

It's Friday, and we're still not home...

Jacob's discharge has been postponed again. He is doing well- just needing more oxygen than they had anticipated- so, they want to continue watching him a few more days. He is up to 5lbs 11.4 oz, which means he has more than doubled his birth weight and gained 3 lbs in 7.5 weeks!!

Tuesday, March 24, 2009

5lbs 7.5oz!

Jacob is doing well. We are planning to bring him home on Friday!! (if all goes well this week) He will be on oxygen and 2 monitors for the first month or more after we come home. We will be going to many, many different doctors for follow-up appointments and therapy, and we will be keeping Jacob on a 3 hr feeding schedule day and night. He is unable to tolerate large amounts of food, so he will have to eat often day and night. It looks like we will definitely be busy for the next few months or more, but we are very proud of Jacob and his progress so far!! Please continue to remember us in your prayers.

Friday, March 20, 2009

Homecoming delayed again.....

Jacob weighs in at 5lbs 4.6oz as of tonight. He has had quite an eventful week. Because of his inability to "tolerate" the car seat and his continuous 'desating', he is now on a nasal cannula which provides him with oxygen. He is continuing to have new issues come up and the doctors say it will now be at least another week before he comes home. When he does come home, he will continue to be on the oxygen for a little while. Please continue to pray for Jacob and for the rest of us as we try to keep up with all that is going on.

Wednesday, March 11, 2009

Not coming home just yet...

Jacob is not quite ready to come home. He is unable to tolerate his carseat, which basically means he has trouble breathing while sitting in it. They are planning to test him again next week, and hopefully he can come home next Saturday. He still weighs in at 4lbs 5oz and is doing well.

Monday, March 9, 2009

Homecoming!! - maybe

Jacob is "scheduled" to come home on Saturday! He now weighs 4lbs 5oz. Please pray that we get everything done this week - we will be super busy preparing for him. We are spending Tuesday night at the hospital and will be there during the day the rest of the week to "learn" everything. He is taking all his feedings by bottle and will come home on a cardiorespiratory monitor. We are nervous about caring for him by ourselves, but are very anxious to be at home with our little boy. Thanks for all your prayers!!

Monday, March 2, 2009

Jacob is taking at least half of his feedings by bottle each day and weighs a whopping 3lbs 13oz! His week has been pretty uneventful, which is a good thing at this point. It should only be another week or two before he comes home according to the doctor. There isn't much of an update at this point - will write more later. Thank you all for the prayers!! Please continue to pray for each of us!

Tuesday, February 24, 2009

Psalm 44:4

Jacob now weighs in at 3lbs 8oz and is doing well. He takes between 2-3 of his feedings by bottle each day, and they should continue to increase this if he continues to tolerate it. He is scheduled to have an MRI of his brain today and will have a repeat hearing exam next week. He is now in a "crib" and seems to really enjoy it.



We have the "results" back from some of the genetic tests, but they are inconclusive at this point. Jacob is missing a small part of one of his chromosomes, but the geneticists can't determine the significance of this finding without testing both Daniel and I as well. So, we are still waiting.....
Please continue to pray for Jacob and for the rest of us.
"You are my King, O God; Command victories for Jacob" Psalm 44:4

Friday, February 20, 2009

PICC line is out!

Jacob pulled his PICC line partially out today, and instead of putting it back in, the doctor decided to up his feedings and take it completely out. So, Jacob is now fully on tube feedings (i.e. breastmilk) and shouldn't need to go back to the PICC line! He should be able to come out of his Isolette bed soon and be moved to a "crib" (hopefully this weekend). Thank you all for your continued prayers!!

Wednesday, February 18, 2009

No bottle for now...

Baby Jacob is still growing. He now weighs 3lbs 3oz. His feedings are at 4cc every 1 hour (continuous) through the tube right now, and he has been taken completely off the bottle feedings. This has happened because he has been having trouble keeping down his food. The doctors are pretty sure that it is just a reflux problem and are not too concerned. However, if he continues to have trouble feeding, they will need to look closer at his intestines, etc. Please pray that Jacob will do well with his feedings and be able to increase them enough to come off the IV nutrition and to start bottle feeding again soon. They say it will still be at least a few weeks minimum before he can come home.
The doctors are also telling us that Jacob has some rare condition or syndrome, but they haven't been able to pinpoint it yet. This suspicion started when Audri was 10 weeks pregnant, due to the ultrasound images, so we are not surprised at the news now. He has numerous markers and features that they are looking at, but because of the length of time it takes to do most gene tests (3-6 months), they may not be able to confirm a diagnosis for awhile. We have no idea what the future holds for us or for Jacob, but we know that God has His hand on us and Jacob. HE is completely in control of all of this "and we know that in all things God works for the good of those who love him, who have been called according to His purpose".

Sunday, February 15, 2009


Today was the first day that Audri was able to feed Jacob with a bottle. He is still taking one bottle a day, but his feedings have been cut back to 9cc, from 18cc, every three hours after an issue keeping it all down last night. Please continue to pray that he grows and can up his feedings.


Thursday, February 12, 2009

Jacob took a bottle today!

This morning, Jacob took his feeding from a bottle (all 12 cc). His oxygen went down at the end of the feeding a little, but he is doing well. They will continue to give him one feeding of breastmilk a day through the bottle, with the others still being from the tube. He is also still receiving most of his "nutrition" through the IV. It is being gradually decreased as the tube feedings are being gradually increased. Jacob has been moved to an isollette bed (incubator) to help him maintain his temperature and to decrease stimulation. We are still waiting on many of the test results at this point, so the doctors do not have a diagnosis. It does appear that Jacob has some hearing loss (moderate in left ear and severe in right ear), but they will repeat the test in a few weeks. We're praying that God will heal his ears and the test will show an improvement. We are still waiting, waiting, and waiting for answers......

Monday, February 9, 2009

3 lbs!

Jacob has reached the 3lb mark tonight; he may still lose a few ounces, but we are thrilled he is growing. They have also increased his feedings to 6cc (a tad over a teaspoon) every 3 hours through the tube. As long as he tolerates it well (which he has so far), they will continue to increase the amount everyday! We can't wait for him to come home, although it may still be a little while.

Sunday, February 8, 2009

Baby Jacob is Here!

Baby Jacob was born on February 3 at 6:44 p.m. He was delivered after it was discovered that he had stopped growing in the womb and the blood flow to him was beginning to be compromised. We were not expecting him to arrive so soon, but are grateful he is here and doing well. He will likely spend his first month (give or take) at Northside Hospital.
He weighed 2 lbs 11.3 oz at birth and did not need any breathing assistance the first night. This update will be slightly long as a lot has happened in the last week. Jacob has spent his time so far in a warmer bed and will remain there until he can maintain his own temperature. He is being monitored constantly (temp, oxygen, heart rate, etc). His nutrition is being provided through a PICC line (IV), but he has had some tube feedings. They will gradually wean him off the PICC line and onto full tube feeding. Currently, he is taking 3 cc (less than a teaspoon!) of breastmilk every 3 hours. Audri is pumping every 3 hours at home and taking it to the hospital daily.

He did end up needing some breathing assistance on his 2nd & 3rd days via CPAP (see picture), but he is currently breathing completely on his own! He was jaundice as well, but is now off of the phototherapy as well. Jacob's heart is doing well. He has had 2 EKGs and is scheduled for another one this week. He does have a small VSD, but the Cardiologist does not expect him to need any medical treatment for it at this point. On Thursday, his platelets were low, so he needed a transfusion. They have stayed up since then!

Audri has gotten to hold him a couple of times and Daniel was able to feed him on Friday using a syringe in his tube. JD talks about baby Jacob often and has gotten to see some pictures. He won't be able to see Jacob until he comes home from the hospital. JD has a picture of Jacob that he "kisses and hugs" often. Daniel will be returning to work this week, while Audri & JD stay in Atlanta. Please continue to pray for all of us, especially for baby Jacob. We are so blessed to have so many people praying for us and supporting us during this time. We are even more blessed to know that God is in control of everything and will be with each of us every step of the way.

Saturday, January 31, 2009

Hurry Up and Wait

We have washed the clothes (both girl's and boy's), put sheets on the baby's bed and picked out names for both a girl and a boy. Now we wait. For what we do not know, will it be a sudden sign Audri notices or a doctor's test that has a bad reading. Will it be that Audri spends a week or two in the hospital or everything works out for her to just go in as scheduled, these things we do not know. We do not even know if it is a boy or girl, healthy or not. What we do know is there is a baby in there that God has entrusted to us and we hope that we may meet this little one and care for it until it is ready to care for itself. Until we hold the baby, there is little we can do but wait, pray, watch for signs and wait.

Wednesday, January 21, 2009

Reading through the Bible

On January 4th, we visited Clairmont Hills Baptist Church (which we had been members of when we lived near Decatur) and heard a sermon by Pastor Fred on reading the Bible. Audri and I both decided that we would attempt to read through at least the New Testament this year. Audri, though, began reading in Genesis with extreme interest and is currently in Ezra. She has been reading and sharing with me information on Israel's laws and customs, many of which make sense by today's science. The laws such as washing of the hands, separation of meat during food preparation and what not to eat are often objects of research and 'common sense' today. It is amazing how often we Christians forget the Old Testament as if it is outdated, Jesus said He came to fulfill the law not to abolish it.

Thursday, January 15, 2009

Quick update

Audri has been discharged from the hospital and is doing ok. The baby had a good heartbeat throughout our monitoring at the hospital and showed movement on Wednesday's ultrasound.

Monday, January 12, 2009

And the baby is a...

Up until last Tuesday, we were pretty sure that our baby was going to be a girl. We had a name picked out, pink sheets on the bed and JD would call Audri's bump 'Baby Ruti'. But, after six ultrasounds confirming it to be a girl, the doctor told Audri they are 90% sure it is a boy. Boy or girl, we will love the baby with the love God has given us but it is sure confusing to have been planning for a girl and now plan for either one. As my 9th grade math/science teacher used to say 'God is still God and Jesus is still coming back'!

Saturday, January 10, 2009

I need a bit more milk, please...

I am often amazed at how a little politeness goes a long way. Our son, JD, has learned that as well. He knows that if he says 'please', he is more likely to get what he wants. On top of that, if he says 'please' really cutely he is even more likely to get it. He almost always says 'thank you' after receiving what he asked for. Now if he would be just as polite when we say 'no'!

Friday, January 9, 2009

First Post: Luke 4

Jesus said:
18 The Spirit of the Lord is upon me,
because he hath anointed me to preach the gospel to the poor;
he hath sent me to heal the brokenhearted,
to preach deliverance to the captives,
and recovering of sight to the blind,
to set at liberty them that are bruised,
19 To preach the acceptable year of the Lord.

This, as written by the prophet Isaiah, is why he came. In fact, why would you need Jesus unless you are poor, brokenhearted, in captive or blind? The well do not need a doctor. If you are not these things, or if you will not admit to these things, there is no way for you to come to Christ. Until you realize that you are in need of saving, you have no use for the Savior.